Nathan took his last breath at 9:22 am this morning, in our bedroom right by the windows that shone light on him in this picture the day we brought him home from the hospital

47 responses to “~~Nathan~~~

  1. I am so sorry for you. My heart aches for you. I will be praying for you and your family in the coming days and months.

  2. That is a beautiful picture. I dont have the right words right now….. All I can say is that I am sorry and I am very sad. Love, Daelyn

  3. Max and I are so sorry for your loss. I too, am at a loss for words, but just know that we love you and are thinking of you all.

  4. Susan, we are so sorry. We grieve for you, for Luke, for the girls, and most of all for Nathan. All our love.

  5. I’m very sorry to hear of your loss.

  6. I’m so sorry Susan. I hope you find some comfort knowing that he’s no longer in pain. Nathan has touched many lives, I will always remember him!

  7. How incredibly sad. I am so sorry… you all will be in my prayers in the coming days…

  8. I am so sorry. My heart breaks for you and your family.

  9. We love you all.Love,Matt, Beth, Margot and Ethan

  10. I know the angels and saints in heaven welcomed Nathan. I know you’re not Catholic, but I envision Nathan entrusted in the tender arms of Mary, the mother of us all. He’s your saint in heaven now, your advocate and guardian angel of your family. It does not help the ache of not holding him in your arms – I cannot imagine the pain of that. Michelle

  11. What a beautiful picture – thinking of him in Mary’s arms. I picture him being the ever older brother. Riding above the girls with their first dates, watching them, taking care of them from above

  12. I am so sorry for your loss. I thought of this prayer:O GOD, whose most dear Son did take little children into his arms and bless them; Give us grace, we beseech thee, to entrust the soul of this child to thy neverfailing care and love, and bring us all to thy heavenly kingdom; through the same thy Son, Jesus Christ our Lord. Amen.I am so sorry,Anne

  13. I am so sorry for you and your family. I am glad that he is no longer in pain any more. I wish there was something I could say that would take away your pain, but I know that is not possible.

  14. I’m so sorry for your loss! May you feel the peace and comfort that you need at this time.

  15. I’m so sorry for your loss. My thoughts and prayers are with you and your family.

  16. Susan, I am so sorry for your loss. No words are right, but please know that you all continue to be in my thoughts and prayers

  17. Thank you for sharing Nathan with us. He has a place etched in my heart. Much love and prayers to your family!

  18. I’m so sorry Susan. Please know that you, Luke, Nathan and the girls will always be in my heart and prayers.Your journey has touched so many people. I’m sorry it didn’t end as we all hoped it would.xoxo ~A~

  19. So very sorry for you, Luke, Julia and Lauren.Thank you for having the bravery to share Nathan’s life with us.

  20. I love that in the face of this, you are posting a picture of him in the very beginning of his journey here. Our thoughts and hearts and prayers are with you, as always.

  21. I only first read your story a few days ago, but I would like to add my sympathy and prayers for your family. Nathan, may the angels guide you into Paradise.

  22. I am so sorry for you all. I know he’s in a place with no pain. Beautiful picture.

  23. I am thinking of you always. Jamie

  24. ((((((((Susan))))))I am sorry for your loss.

  25. I’m a bit of a random internet stranger, but I’ve been touched by the story of your family. I am so sorry to hear about Nathan’s passing. He was and always will be a very special boy.

  26. I know that I don’t know you. But, I am very sorry for your loss. How blessed you were you have this angle in your life. I’m sure he is proud to have had such wonderful parents.

  27. I too have followed Nathan’s story through cyberspace. You are gracious to let us in. I’m praying for you and Luke and your girls. May the Lord’s abundant grace and mercy and love envelope you.

  28. I’m so sorry for your loss and such a difficult journey, and I pray you can make it back to the ordinary world.

  29. I just wanted to let you know that you all are in my thoughts and prayers as you always have been. Nathan was the most intelligent and strong kid I’ll ever meet. I will never forget him. All my thoughts and prayers are with you and your family.-Nick Liberatore.

  30. My heart is absolutely broken for you right now. for all of you. Nathan has touched the lives of so many people those who he had never even met. Lots of prayers coming towards you all during this terrible time. Cambria ~TRT~

  31. I am so very, very sorry. Your family is in my prayers.

  32. You’ve shared the beauty of Nathan’s life with the world. I am grateful for the gift. May God’s peace and love lift you, Luke, Julia and Lauren in these sad days.

  33. We are so sorry to read these words. We are keeping you in our hearts.Love,JimII, Pat, James & Kate

  34. Wishing you peace, comfort and love. Here’s to Nathan’s memory!

  35. How beautiful and heartbreaking. Much love to you and your family.

  36. I will forever be grateful to you for sharing Nathan with me. If not for him, we may have never met and I think the world of you.I am so sorry that you will not be able to hold him in your arms anymore, but am thankful that he will no longer be suffering. He has forever touched my heart Susan! You, Luke and the girls are in my thoughts and prayers!

  37. I’m sorry just doesn’t say it. Your family is in my thoughts and prayers. Much love,Louisa Xx

  38. Susan (and family)You are in our thoughts. We will never forget Nathan.Christian, Kedzie, Alexandra, Johannes

  39. hello,i never had a chance to meet your son and was linked to his site from another parent of a kid with neuroblastoma. i just want to say that as a fellow parent, i am so sorry for your loss. i can’t even pretend to imagine how you must feel or the challenges your family faces – i just want you to know that even people you and your son don’t know are wishing you helpful thougts and hoping that you can make it through this transition to life without your son in your everyday. even though we never met him, we will remember him.

  40. My heart and prayers go out to you and your family.

  41. I am so sorry for your loss. I will keep your family in my thoughts.

  42. I found your blog by way of Castles in Spain.I’m so sorry for your loss.

  43. love and peace to your family.

  44. Susan and family,There aren’t words enough to say how much Nathan touched those who never knew him. From your loving words we traveled the journey of Nathan’s life over your shoulder. Thank you for that gift.I will remember Nathan. His life and death remind me to love on my children a bit more each day.I’m praying for you.

  45. It´s nearly 10pm here in Spain. If I´m right, it may be 2pm there in Colorado, and you may be saying HIM goodbye. Oh, God, I can do nothing but think about your family!!!! I´ve been days trying to write, reading all the posts, thinking about life, trying to imagine and remembering all I have read and seen about sweet Nathan. And I have finally found that no word is enough or complete to express my feelings, this mixture between deep sadness and immense apathy. All I wish for you, Susan, is the strength enough to go on with life: your girls deserve a Mum as strong as you´ve been during all these years by Nathan´s side. You gave him your sweet cares, your love all those endless nights, and you have to know HE MUST BE SO PROUD OF YOU… Susana

  46. I can’t imagine your loss and I don’t want to say the wrong thing… I don’t know you, but you and your family will be in my prayers forever

  47. Oh Susan, I just found out about Nathan.The ache in my heart has to be only a minute fraction of the one in yours right now. He’s a beautiful boy – always will be And you are an amazing mom.I am so, so sorry.

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