So – most of you know that I am in NYC with Nathan awaiting a new trial. Nathan will be the first patient on this trial.
I have been told it has promise.
I saw one of the nurse practitioners briefly and she asked if I was excited. She then saw my face and realized that was not the right emotion and I explained I was very happy Nathan was getting this treatment.
Later we saw the peds fellow and when he learned Nathan was #1 he got excited and asked what did Nathan want for being #1 – a trip to the moon? He obviously also thought that this is very exciting.
So – I guess it is a good thing that the medical professionals are excited about this trial. I am starting to realize what high hopes they have. His doctor even mumbled something about “if Nathan does not have a complete response after the first round but can’t continue…..” Really? Do they think it could be THAT effective?
I have no expectations. I’ll take no progression. I hope he can have more than one round. Those are my hopes right now.