Most people reading this keep up with Nathan’s page and so you probably already know that he is in the hospital and Julia is at home on oxygen for pneumonia. I thought I’d add some visuals.
The picturesque scene to the left was taken with my phone out the window in Nathan’s hospital room. The onocology kids get private rooms with the view of the park. On of the perks, I guess.
I stayed with Nathan at the hospital today. Since I am breastfeeding, Lauren stayed too. She did pretty well today but I doubt tomorrow will go as well. She is currently in her crib crying refusing to go to bed.
Julia is all hooked up to the oxygen, dosed up with codeine cough syrup and in bed. I am already sick of hearing the drone of the large oxygen machine sitting in out upstairs hall.
I have no idea how long she will need the oxygen. What a pair her and Nathan will make in their room at night, Julia on oxygen, Nathan hooked up to IV antibiotics.
I feel the need to write a new post. Sorry about how depressing the last one was.
How about I talk about Lauren. She is growing so fast. She is army-man crawling quite effeciently now. She is also going from her stomach to a sitting position and se pulled up on the bunkbed ladder yesterday. She is such a joy. She hugs us and smiles while doing it. She plays so well by herself and she just wants to be happy all the time.
Here are some pictures.
I have been gathering my thoughts on the “A Lion in the House” documentary and I hope to post about it soon.
Otherwise I feel I have nothing interesting to write. I am definately slumping into a depression. It is hard to face the facts that this time, there is almost no chance of Nathan going into remission again and if he does, staying there is so very unlikely. How do you look at 6 year old boy happy and running around and also wrap your head around the fact that his body is filled with cancer and it is probably going to kill him?
So – that’s where I am at. That’s all I can say.
This documentary is billed to be a very real look at the issues families dealing with childhood cancer deal with. I imagine it will be difficult to watch. I plan on Tivo-ing it to watch when I am ready. Any of you who have wondered what it is life for us…this program might give you an insight.
It airs Wednesday June 21 and Thursday June 22 on PBS
Independent Lens . A LION IN THE HOUSE | PBS
Nathan started his first chemo today since we found out his cancer is back again. This is his 14th round of “chemo” in addition to 10 rounds of high-dose accutane. I am used to this chemo stuff. I was delighted to discover the chemo he is having all week is only a 1 and a half hour infusion! This is very short in chemo-land.
He finished up and we stopped at a nearby bakery for a goodie. As he was perusing the case he started to stagger and sway. I sat him down and his eyes kept closing and rolling back. He recovered after a minute or two and picked out a cookie. We drove right back over to the clinic where they checked him out and could find no reason for it. His doctor decided he had better have an echocardiogram before chemo tomorrow since this chemo can cause heart problems and he has had plenty of this type in the past as well as other types that can hurt the heart. They sent us right over and he had the echo. The tech told me his heart function is just fine.
Now, I am just not sure about mine.
A shout out to all the wonderful Dads out there. A special greeting for my Dad, Bill, my father-in-law, Mike and most importantly my husband, Luke!
We are not doing anything today because we threw a birthday party for 60-some people yesterday at a park and are worn out and also because Julia is sick with a fever.
Luke is also not feeling very festive today in light of our bad news about Nathan this week. We brought Nathan home from the hospital 6 years ago today, also on Father’s Day.
So – I wan’t going for the down tone in this – sorry.
Fathers, hug your kids today and kids, hug your dads.